One size doesn’t fit all – we understand a different approach is needed.
Our poem is dedicated to the people living with rare diseases and the researchers and companies who strive to find a better way.
By Claire Williams
Confusion, fear, frustration – diagnosis at last – new hope, anticipation
Locating the small spread-out league of experts, following their vocation
Giving hope yet carefully managing such high expectation
In partnership with those affected, a close-knit expert mini-nation
A shared passion approaching it with grit, determination
A united voice spreading awareness, realities, providing education
And yet from those on this journey, we can all take inspiration
For they live their lives, approaching each day with renewed determination
Such perspective, a smile, joy, appreciation